Her favorite gift this year!!!
It is hard to believe that our Kaylea turned 9!! She is such an amazing, strong, beautiful, happy and brave young lady. She has endured more in 9 years, medically speaking, than most of us do in a life time! She has been in our arms for a mere 3.5 years, but honestly, I don't really remember the days before Kaylea.
Since we know she has more surgeries and hospital stays in the next year or two, we started her off with an iPod shuffle! She hasn't taken it off since all her music was put on it Friday night. She ignores us just like her older siblings! Bless her heart, she fell asleep in her walker traction tonight listening to her music! HAHA
We had cake and ice cream here at home and of course took cupcakes to school on Friday. When she was in the hospital my parents had a party there for her so they could celebrate her birthday with her, too!!
Her traction is working! When she went in for her surgery the curve in her back was 88˚!!
Exactly 1 week later, her curve was only 54˚ !!!!! I think that is AMAZING. She still has about 6 more weeks in traction and then on to the castings. She will wear a body cast for 6 - 12 months with the casts will be changed every 2 months. After the castings, she will then be in a brace for some time. That is at least the plan for now. We are still praying for guidance in this area. If we follow this plan she will have to have a tracheostomy. The trach is the part that really scares me! I'm really nervous as to how it will change her life. If you have ever dealt with a trach and would be willing to discuss with me, I'd love to hear from you!!! We know it will require nursing care for her at least at school and on the bus to and from school. John and I will also have to attend 40 hours of training to learn to care for her. Any thoughts, comments, ideas are appreciated!!
Thanks for checking in.....