Wordless Wednesday

Wordless Wednesday (Wheelchair Swinging)

It's FALL y'all!!

Harvest cookies

(pumpkin, white chocolate chips and pecans)

We like pumpkin and baking, so we made these cookies....yummy! I haven't met anyone who did not like them...oh, except Rylea! lol She won't eat them....but Rubea LOVES 'em. I think she could eat her weight in them...but she is still little!!

Tracheostomy

Kaylea had her trach placed on Thursday. Life has been, well, um, busy! She was suppose to have her first trach change Monday or Tuesday so we could go to Scottish Rite for her next surgery on Thursday. Well, as is normal with Kaylea, she had some complications! Unfortunately she is facing a possible second surgery here at Children's before she can be released to Scottish Rite. We will not know the details until at least Thursday!!

She is, however, doing absolutely wonderful! She is even trying to talk! She is still bossy, even without a voice! Everyone should watch out. I am sure she is bored and I know she is uncomfortable.

John and I are taking turns staying at the hospital with her and the other at the RM House with the little girls. My parents are taking care of the rest at home! So, for now things are good. The staff and volunteers at the RM House are all fantastic!

We were given tickets to the Mavericks vs. Memphis game tonight. Thankfully my sister, Karen, is able to come and sit with Kaylea and John's parents are watching the babies.

Thanks for checking in on us....

ENT

Cool tat, Kaylea!!

Visiting with the clown

Kaylea has an appointment tomorrow with the ENT. They are suppose to let us know their reasoning for wanting to put in a trach. I'm still not for this option, but we will at least find out what they have to say and find out what it would entail and our options. I am hoping the hospital won't drop her as a patient if we do not have the trach put in, but we will deal with that issue, if it becomes an issue.

Kaylea is doing exceptionally well and tolerating the procedure better than expected. She is up to 15 lbs of traction. She will have pictures taken Friday to compare to the ones taken last Wednesday before her surgery. THEN....we should be able to bring her home over the weekend!! WAHOO!!! A whole week early!!! Which means she shouldn't miss any school, except they aren't expecting her. We do have to figure out the transportation issue and the issue of switching her from her walker to her wheel chair. They both have the traction pulley system attached so she is able to switch between the two.

I am going to a Women of Faith conference Friday night and Saturday, but we should be able to check her out of the hospital on Saturday and come home on Sunday.

She will go back to have the Halo removed the 1st of October. Then they will cast her torso for 6-8 weeks. Also, that week Owen will have a hand surgery. He is very excited that he gets to sleep in the hospital :o) He has been waiting for his turn!! If we can squeeze it in, Rylea will have surgery to correct her club feet! Sound like a busy fall to me!!

Love,

Life can wear you out

Yes, she was really sleeping like this!
This girl LOVES her food. I couldn't believe she fell asleep :-)

Life is rough!!

Hugs,

Carla

Wordless Wednesday.....titled: I want her HOME!!!!