ENT

Cool tat, Kaylea!!

Visiting with the clown

Kaylea has an appointment tomorrow with the ENT. They are suppose to let us know their reasoning for wanting to put in a trach. I'm still not for this option, but we will at least find out what they have to say and find out what it would entail and our options. I am hoping the hospital won't drop her as a patient if we do not have the trach put in, but we will deal with that issue, if it becomes an issue.

Kaylea is doing exceptionally well and tolerating the procedure better than expected. She is up to 15 lbs of traction. She will have pictures taken Friday to compare to the ones taken last Wednesday before her surgery. THEN....we should be able to bring her home over the weekend!! WAHOO!!! A whole week early!!! Which means she shouldn't miss any school, except they aren't expecting her. We do have to figure out the transportation issue and the issue of switching her from her walker to her wheel chair. They both have the traction pulley system attached so she is able to switch between the two.

I am going to a Women of Faith conference Friday night and Saturday, but we should be able to check her out of the hospital on Saturday and come home on Sunday.

She will go back to have the Halo removed the 1st of October. Then they will cast her torso for 6-8 weeks. Also, that week Owen will have a hand surgery. He is very excited that he gets to sleep in the hospital :o) He has been waiting for his turn!! If we can squeeze it in, Rylea will have surgery to correct her club feet! Sound like a busy fall to me!!

Love,

For Marjorie

This is one of the wires in Rubea's feet!  More cute pics of the girls on the Rylea and Rubea blog!!

Marjorie, this was for you!!  :-)

Update...

Good Evening!!

Rubea is out of her 5 hour surgery....it was suppose to take only 2-3 hours! WHEW!  She is resting comfortably with daddy and Emilea. Mommy is home taking care of the rest of the crew! They were able to do a big portion of the surgery, but did not finish. She will be going back in so they can finish in 2 weeks. The doctor (whom we love and trust) said she could not withstand him trying to finish. So, back to the OR in a couple of weeks! She has been nauseated and mad, so it was a fun time for me this afternoon. She has been an ANGEL for her daddy! Little sinker....

I'll update again tomorrow when we get her home!!

Carla 

Surgeries....

Rubea will be having club foot surgery tomorrow to correct both of her feet. She went through casting soon after coming home in October 2007. However, her tethered cord really did some damage so she will now have to have surgery.  After recovering from this surgery, she should be able to get up in a stander. This will be a whole new world for her. She has only been able to play sitting assisted or laying on the floor on her back or belly! We are so excited that she will finally get to be up right and start bearing weight! Of course, shoes are now in the near future for her!! She really can not keep shoes on, so we are REALLY EXCITED to go shoe shopping!!  

Kaylea had a minor surgery Friday afternoon. She had some complications with healing from her tethered cord surgery. So now her titanium rib surgery will not be happening in April, but we are hopeful she will be cleared for that surgery in May!! 

Thanks for checking in......

Carla