Wednesday, November 19, 2008

A few days late.....

But we are HOME!  We got released on Sunday afternoon. We have been to a few docs since then and no one knows what is/was going on with her.  She is her happy, normal, fun loving self though! She is now afraid of the doctors, though! I think it is the number of times they stuck her in the 2 days we were there. Poor baby has HORRIBLE veins.  The week she was in PICU from her surgery they tried to put in a central line because all her veins were *blowing* and they needed one for 1 of her IV's.  They finally did an *A* line...in her neck!  I am not looking forward to that 2 week stay in January!    
On a happier note, Rubea is going to visit her classroom at school on Friday! She won't start for a while, but they will be doing her IEP meeting after Thanksgiving and her teacher wanted her to see the classroom before the meeting. She knows the school and everyone knows her, so hopefully it will be an easy transition. I think she will love being able to watch the other kids. Since we are getting things set up before her surgery in January, they can put her on home bound services if we choose to use them. 
Kaylea will not be having surgery with Rubea in January as planned. ugh...  She will also have to have a spinal cord release before she can have her titanium rib implant.  So, she will most likely have that in December and then her rib placement in February.  
I guess that is all the news for now........

3 comments:

Barbie said...

I am sorry you don't have answers to what was wrong with her. Hopefully they will figure it out or her little body heals it.

I am still praying.

ThatGirl said...

Your life exhausts me! Glad Rubea is feeling better, but hope someone takes you out for dinner and drinks soon ;) Hugs.

redmaryjanes said...

I will be praying for your family and sweet Rubea. It looks like there is a lot ahead of her, but I am sure that once everything is as it should be, there will so much happiness and peace.