Sunday, November 1, 2009

Home at last....

before trach surgery

isn't she BEAUTIFUL???

after the surgery

at home with Rylea...and no halo!!!!
and with Rubea!!

Kaylea is home!!

We have actually been home for a week, but it has all been a blur. We have nursing services for 12 hours a day and I can't seem to get anything done! Kaylea is happy to be home, but is quite bored when everyone is at school. She is on home bound until the new year, but we may try to change that!

She is in a cumbersome cast from her neck to her hips! She is having a hard time moving and doing simple tasks, but slowly she is figuring out how to maneuver and get around. She also has some raw spots from it rubbing her....I feel so sorry for her! It has to be uncomfortable and miserable!! ugh.... Of course, she is such a great trooper and doesn't complain! She amazes me!
She has such strength and courage.

She is able to talk *around her trach* so she is able to communicate just fine...however, it. is. one. word/syllable. at. a. time. :-) She had a speaking valve allowed her to talk *normally*, but the nurse lost it! Of course it is $100. to replace, too!!

I have no clue what the rest of her treatment will be.... we are going to be switching doctors.

Stay tuned......


1 comment:

Sharon and Michael said...

Thanks for posting.
What's the latest with everyone? How are you holding up?