We spent the last 2 days at a local hospital with Rubea having x-rays, MRI's, CT scans, Echo, EKG, blood work, Dr. appointments, etc. She is being evaluated for their Titanium rib program!! One of the Docs that invented the devices and procedure is on the teams of docs here. They will attach the titanium ribs to her ribs to help straighten her spine and allow for her to continue to grow. Our 7 year old daughter, Kaylea, went through the evaluations in February, but has to gain more weight before they can help her. Rubea will need surgery to release her tethered cord before they can place her ribs. So, we wait. For both. Which means they will look at trying to do the surgery on both girls at the same time. This would be helpful since the stay in the hospital after the surgery is typically 7-10 days.
If your child has had this surgery, we'd love to hear from you!!!